So the Internet is still giving us fits (someone is coming to the house today to check things out) but we wanted to give a quick update on what was found on Wednesday with Charlie's scope procedure. So they took a camera and went down his esophagus, into his stomach, and peeked into his intestines. The results look fine. They found no inflammations, ulcers, or places that were getting bothered by his acid reflux. So that is good news. They took several biopsies to test for things, but they don't expect to find anything. They were unable to test the motility of his stomach during this procedure unfortunately.
So they think that his stomach might just be too immature to handle his food and that he needs to grow and get older. They told us most likely to expect a surgical feeding tube to be implanted within the next few weeks. So at least we can start to prepare mentally for that. We have read stories that CDH kids may need feeding tubes for quite a while. Does any CDH parent have experience with such a feeding tube? At least this will mean he will have nothing on his precious little face :-)
So we are doing well, and Charlie is doing great...he is just so strong...just needs to learn to eat and get a little more mature! That's it for now...talk to you all soon!