Saturday, April 4, 2009

Moving on up

First an foremost, may we congratulate Craig and Kristi Kuehl on the birth of their amazing son Kaden. He has CDH and our prayers go out to him and his family. For those that would like to follow their story you can find a link to their blog on the side of ours. Fight little guy, fight! 

Now for a Charlie update. He was moved to nursery D on Thursday, back to the less critical area and here's praying that he keeps moving the positive direction in the NICU. The feedings through his NJ tube has been going pretty well. He is up to 6 ml per hour which is about 20% of what he should be getting. They are increasing it 1 ml every 12 hours, so we should be getting to a substantial amount fairly quickly. They are holding off on any oral feedings (breast or bottle) until next week in hopes that his stomach will have a chance to kick start. But overall he is doing just great, smiles often, and just loves to be held and talked to. We love to accommodate his needs!

So there are three CDH babies in our hospital currently. Baby K, who is so amazingly strong, beautiful, and is doing fantastic. We have become good friends with her parents and they have taken a liking for Charlie as well. A third baby was just born this week with CDH this week and is fairly stable awaiting for surgery. We have not had an opportunity to meet the parents, but we hope to share our lessons learned with them. The nurses have told us that this is unusual as they normally only see 4 or 5 cases of CDH a year. They have already had two, currently have three, and it is only April. God bless them and the wonderful work they do bringing hope to us all. God truly works through them!


Maxton's Mommy said...

Good to hear Charlie seems to be making a step in the right direction! Weird.. Maxton was born at Vanderbilt and there were 2 othe CDH babies when we were there and there had already been like 2 or 3 before us this year and they typically only see 5-6 a year ( I think they told us we were the 6th one and Max was born March 3rd!) I wonder if there are more CDH babies being born lately... Anyways, hope things keep going in the right direction for you guys!

Fer said...

I am glad Cherlie is doing fine... Hopefully he'll be home soon :)
I keep thinking about you guys.