Wednesday, June 27, 2012

the journey continues....

"Two roads diverged in the woods, and I --
I took the one less traveled by,
And that has made all the difference."

This blog was created as a space to document and share our journey after we were told it would not follow the path we expected.  At a time that we were scared and searching for information and hope, we found much solace in other people's blogs. Our initial goals were not only to keep friends and family informed, but also to hopefully give other frightened expectant parents some kind of hope and guidance as we had found in other families' blogs.

It was just over four years ago that we found out we were pregnant after trying to conceive for almost two years. Four years ago that we started a journey that we did not even fully understand at that point. Along the way we learned what it feels like to have your world turned upside down with 8 little words - "We think there's something wrong with your baby." We have found a strength to push on despite fear of the absolute unknown. We have trusted a perfect stranger to care for our child - to take him apart and put him back together. We have cried for families and their babies whom we have never met, yet feel inexplicably connected to. We have made memories that will never be erased, no matter how haunting some of them are. We have made friends. We have grown in ways never even imagined. We would not change a minute of where we have been and what we have done, as strange as that may seem.

We are blessed. Totally, completely, incredibly blessed. I personally do not know if that word "blessed" was even a part of my every day vocabulary three years ago.

We firmly believe that everything indeed happens for a reason and this is no different. We are better people, better parents, better off because of all we have experienced along our Gumdrop's Journey. We want to preserve this space as somewhere that focuses on CDH and our journey through this part of our lives. We are obviously not untouched by CDH in our lives today, but this blog has served its purpose and with our family about to grow, it seems this is as good a time as any to make a move.  We are beginning a new family blog at We hope you continue to follow us along our journey as a family, but if not we sincerely thank you for your love and support shown to us here. 

Follow your path with courage, no matter what unexpected places you find yourself in along the way and always believe that you are truly exactly where you are meant to be. 

Tuesday, April 10, 2012

Happy Easter - a quick reflection

Hope everyone had a great Easter weekend. This time of the year always reminds me of how far we have come. Just a quick look back for you... 

Charlie's 1st Easter - 2009
Still in the NICU and enjoying a little treat to aid in his oral aversion issues
Such a skinny little (yellow) baby! :-)

Easter 2010
Venturing out in public for one of the very first times
First time in a restaurant and I forgot his special seat cover to keep 
him from any yucky high chair germs. I was so upset and proceeded 
to wipe the whole seat down with clorox wipes.

Easter 2011
Such a cheese ball and working the camera to earn his M&M reward

Easter 2012
We are so blessed.
Our last big holiday as a family of 3!

Friday, March 9, 2012

CDH Awareness

We were blessed with the birth of an almost perfect child. His imperfection was called Congenital Diaphragmatic Hernia (CDH) and he had surgery to correct it when he was just 6 days old. He fought to get to where he is today.

We strive to raise awareness for his fight and CDH every second of every day. We don't need an excuse to share the story of our journey.

That being said, having a month, a day, a color that unifies us and stands as a symbol for our fight gives us a renewed sense of purpose and power. It makes us feel we belong to this club we never wished or imagined being a part of and allows us to ask others to join in our quest. It starts with a day and a color and carries us through the other 364 days.

March is CDH Awareness month and we ask that you join us in wearing turquoise on March 31st. More importantly, tell someone WHY you are wearing it! (And we would love it if you could send us a picture of you wearing your turquoise!)

pictures from last March 31st

Tuesday, February 14, 2012

Making it blog official...

Our family is growing.

Charlie is going to be a big brother.

And the baby is HEALTHY!

We are 19 weeks along now - due July 9th. We went to the Perinatal Center this morning for our big sonogram/anatomy scan and they found a complete diaphragm and all organs where they should be! They did see 2 choroid plexus cysts, but they tend to be completely meaningless and should go away within the next couple of weeks. They saw one on Charlie too around this point in my pregnancy with him and nothing came of it. Today might be the first sigh of relief we have had since our positive pregnancy test nearly 4 months ago. Life is good...

Sunday, February 5, 2012

A Birthday Party Fit for a Superhero...

Some how three whole years have passed since our little miracle man came into our lives! While on one hand I cant believe it has been three years, on the other hand, it seems like just yesterday. Strange how time works like that!

As per Charlie's request, we had a superhero themed birthday party yesterday to commemorate the occasion and celebrate with family and friends. To say he was excited is an understatement! He could barely contain himself as he waited for every one to arrive and was nonstop energy the entire afternoon!

Between the pizza and cupcakes, pinata and presents - a good time was had by all and Charlie has once again been shown how loved he is. We are very lucky to be surrounded by such loving and caring people.

a tower of superhero cupcakes

one very excited birthday boy!

'patiently' reading a birthday card before tearing into the present

and this was his reaction to being sung to
(I think he was just embarrassed and this was how he coped!)

making a wish!

I've been waiting for this alllll day....

mmmm.... frosting...
(the cupcake is really just the vehicle for the real treat - frosting!)