Sunday, March 1, 2009

Charlie is doing well

Charlie's doing well and his doctors are starting to reduce his ventilator settings ever so slowly. He appears to be comfortable and only has a few fits everyday that require medicine to calm him down. We were able to help change several diapers and even gave him a sponge bath this afternoon. So things for us and Charlie are going as well as they can right now. Thanks to everyone for their prayers and positive thoughts, it has given Charlie and us the strength to get through this.

He has really made incredible improvements. CDH babies are special, strong, and individuals. Charlie is no exception. Here are a few videos to show you what he is like. The older one was taken a few weeks ago when he was still on the oscillating ventilator. That is about all the movement he would make in single day. The newer videos show you how awake he can be, and spends hours just looking around. One video shows him with the hiccups...they look like they hurt, but he got them all through Patty's pregnancy and still gets them often!


Tracy Meats said...

The videos are precious!! Charlie looks great and the little baby sounds and hiccups are adorable. Many prayers that Charlie stays strong and continues to make improvements with his vent settings!! Go Charlie Go!!!

Tracy Meats - mom to Ian, born with a LCDH on 4/3/04 and WY and CO State Rep. for CHERUBS

Julie, the mama said...

Super news. Those videos are precious. You are right, he is very alert. And absolutely adorable.

Hope y'all are finding some time to rest while you have around the clock "babysitters."

Fer said...

LOVED the videos!!!!!!

Craig and Kristi Kuehl said...

He looks GREAT!!! Thank you guys so much for sharing Charlie with us. We went to UCSF for our 34 week appointment, and with Kaden's birth right around the corner, it is very inspiring to see the positive side of CDH. We got to meet baby Addison today. She has been on ECMO since Friday, but seems to be doing good. I will keep Charlie in my prayers, that he continues to grow stronger every day and that he is home in no time :)