Friday, February 27, 2009

something's not quite right

Charlie has been running a bit of a fever the past couple of days. They drew more blood work yesterday and initially it showed nothing new or concerning. They will continue to do the growth tests over the next few days. It is hard to believe that there could be another infection when he is on such heavy doses of antibiotics already. There is some concern for his PICC line. It is a little red looking and you can feel the line in his leg, but Dr Bode and Dr Miller both think this is just due to his sensitive veins, skinny legs, and fair skin. If they do end up having to take out the line, it will mean a trip to the OR to put in a central line. This isn't a huge concern, but we just wish they would decide one way or the other. He has been very sensitive and irritable in the past day too. I am not sure if this is because he is not feeling well or if he is going through some withdrawal from the fentanyl. He gets so upset though that it is nearly impossible to calm him down and he starts gagging on his breathing tube. Hopefully today will be an easier day for him!


Julie, the mama said...

My two are down for naps (12:22 EST), so I have a rare few "day minutes" to pray for Charlie right now. Will start now...

Tracy Meats said...

I hope Charlie has a better day today!! Many prayers doctors can pinpoint what is causing Charlie's fever and work on getting him to feel better. His little body has been through so much and he needs his rest, so hopefully he is more comfortable and relaxed today. Keep fighting Charlie!! Hugs Patty and Vince.

Tracy Meats - mom to Ian, born with a LCDH on 4/3/04 and WY and CO State Rep. for CHERUBS

Fer said...

Dear Patty and Vince, I hope Charlie is having a better day. I will keep him in my prayers! He's such a strong little baby.


Terri said...

Hi Patty and Vince I just happen to come across your blog....through "google alert." I love to keep up with all these CDH babies. My daughter Ava was born in 2006 and she has given us quite the ride the last 5 monhts!

I'll pray for your little Charlie. He sounds like he is quite the miracle. If I can help in any way or you want to talk my email address is

~Terri Helmick