Thursday, February 19, 2009

Improving when we left

So it's never easy to see your child grey. It all happens so fast too. We called to check on Charlie Thursday at 6 am and his overnight nurse said he had great night and he was doing really well. The next thing we know we get a call around 10:30 am saying that they had to start him on antibiotics because of a possible infection and that he is not doing well. It was a tough day but when we left his side this evening he was resting, his had fever broken, and he had started to get back just a little bit of his color although he was still really pale. So he is currently resting and looking more comfortable than he did earlier in the day. Now I know why they call it the NICU roller coaster.

Another side note of interest. They told us that they might have to move Charlie's bed. His bed is set up in the area that they use for the ECMO machine. This is the heart and lung bypass machine. The reason they are moving him is that another CDH baby has arrived (in his or her mother still) and they need that area in case he/she needs to go on ECMO. They do have two ECMO machines at the hospital, but hopefully they feel confident enough moving Charlie knowing that he is at a lower risk of needing ECMO. 

Thank you for all the prayers and positive thoughts. We know God is listening and that he will get us all through these long nights!


Dee said...

Thank God and may he continue to hold little Charlie's hands and heart. Thinking and praying for all of you. Love, Dee

Julie, the mama said...

What a beautiful post to find this morning. Thanks for updating with this encouraging news.

chinaman2768 said...

Hi Guys,

Hope today becomes a good day for you. I missed the passed few days and was thrilled to see the beautiful pictures of him with his eyes open. What a beauty. We'll continue to pray for your gift from God. Stay strong.

Aunt Janice, Uncle AJ, and the girls

Fer said...

I agree, this was a beautiful post :)

Tracy Meats said...

Many prayers for Charlie in the days ahead. I hope the antibiotics are working and Charlie is feeling lots better. Stay strong, for things can change so quickly in the NICU. God is watching over Charlie and we are sending you lots of postive energy and thoughts for a good weekend.

Keep fighting Charlie!
Tracy Meats - mom to Ian, born with a LCDH on 4/3/04 and WY and CO State Rep. for CHERUBS

Dee said...

I Found this quote this morning and was thinking of you....“From this day forward, You shall not walk alone. My heart will be your shelter, And my arms will be your home.” Hope today is a good one for all, Love you, Dee

Fer said...

How is Charlie doing today?