Wednesday, February 18, 2009

much better day in Charlie-land

Charlie had a really good day today after his downward spiral yesterday. His numbers were great all day and Nurse Dee (one of his and our favorites) was very pleased with him all day! He only needed one extra dose of pain/sedation meds all day. Tomorrow they want to start trying to wean his fentanyl drip a tiny bit - - hopefully he will handle it well. They have already warned us that he could go through some nasty withdrawl once the meds are weaned, but hopefully we can ease him through it without major problems. 

Charlie was actually the hit of the C Nursery today because he spent a good portion of the day wide awake and looking around. Everyone was amazed because he is usually a pretty sleepy boy. It was really hard to leave him this afternoon to go let Chloe out and feed her because he was so alert! I felt much guiltier leaving him like that than when he is sleeping peacefully. Everyone loved him though and Nurse Dee even put a musical light up toy in with him to keep him occupied when she had to take care of his meds and chart. 

We got some more cute pictures to share. He is wearing socks now and loves blowing bubble around his vent tube!


Tracy Meats said...

Keep blowing those bubbles cute! The pictures are great and you got to love that he has the itty bitty socks on. So happy to hear that Charlie had a good day and was very alert today!! Many prayers for many more "great days" in Charlie-land!!

Tracy Meats - mom to Ian, born with a LCDH on 4/3/04 and WY and CO State Rep. for CHERUBS

Carrie Jo said...

Glad to hear he is improving! We're still praying for him.

Dee said...

Great day....hoping every day gets better and better for you both and Little Charlie!!! (nice name for your favorite nurse!!) Thanks to Dee for loving Charlie....As Always, Love and Prayers from DEE

Julie, the mama said...

I love good days in Charlie-land! The pictures are adorable.