Friday, October 16, 2009

Life is good...

Its been a busy couple of weeks enjoying the fall weather, getting ready for winter, and dealing with the hubbub of daily life! Charlie is moving around better and better everyday. He has fallen in love with Chloe and thankfully she is a good dog who puts up with him trying to crawl all over her and getting so excited that he just bangs her in the head over and over! He has also managed to get his fair share of fistfuls of fur from the cats. They have also been very well behaved and deal with Charlie very well. Some days they are braver than others, but we have not had any problems with them.

We went to see Dr Ratner for our third surgery follow-up since we have been home. We love him and are always glad to get his take on Charlie's progress. We started with a chest x-ray over at the hospital and thankfully they did not have to use the same torture device that they used last time. We had a different radiologist who doesn't necessarily like to use it and Charlie is able to sit up on his own. So Daddy just held his arms up and they were able to get the shots that they needed.

Dr Ratner said that everything looks great. His left lung has pretty much filled out the entire space and will continue to develop from here. His diaphragm also still looks secure. This was the first time that Dr Ratner actually spelled out any specifics about reherniation. He said that the real concern is for the first year (that is when they see most reherniations occur) and that they usually continue to monitor for up to the first five years just to ensure that there are no problems due to the size of his repair. He didn't seem to expect there to be any problems though. He is pleased with Charlie's growth and thinks we are doing great! We go back in January for another checkup and probably in April for another chest x-ray and checkup.

His reflux has been good (KNOCK ON WOOD) with no increases in his reglan at all and no increases in his zantac since July. There are some concerns for using the reglan for extended periods of time, so we are trying him off of it and seeing if he really needs it. To try and balance that out, they increased his zantac dose to 0.8mls 3x a day (though he usually only ends up getting it twice because he sleeps so well at night). We have been doing this for a few days now and so far, so good!

Charlie's feedings (KNOCK ON WOOD) have been really good again lately. He finishes his big bowl of cereal and fruits or veggies and cries for more! We still have some texture issues - he gags on anything chunky or somewhat solid - but they also seem to be getting a little better. Over the weekend he started eating the organic puffs (something like Cheerios for babies) fairly successfully. Before he would put it in his mouth, but start gagging as soon as it was on his tongue for more than a second or two. We can only give him one at a time or else he chases them all over his tray trying to get them all at once, but he does well with them!

The sippy cup is another story all together! We tried to start introducing it a couple weeks ago. We used a Nuk cup and it went ok. He did pick it up and try sucking on it, but was not hugely successful. We tried the hard plastic sippy cup we had and he just chewed on it - so much so that he actually left little teeth marks in it. The more we offered it to him, the shorter his tolerance for it. We tried a Nuby sippy cup the past couple of days with no success. It has gotten to the point where he throws an outright tantrum when we give him the sippy cup. So we will go Charlie's pace as usual and wait for him to be ready. A little patience goes a long way with our little man!

Hopefully you enjoy our pictures! We did a little fall photo shoot for ourselves last week. Charlie wasn't in a smiley mood, but I think they are nice regardless!

family photo at the apple orchard

Eman posing on the pumpkins with fritter crumbs all over his face :-)

One of our super nurses, Nancy, came over for a visit last week. She had gone to Disney with her family a while back and brought Charlie a souvenir! He was the only one who got a souvenir from her trip, so he is very lucky! And he of course looks super cute with his ears on! A true Mouseketeer!

Charlie picking out his first pumpkin!
He wanted all the dirty ones of course!

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